Cure HHT Advocacy Returns to Capitol Hill

HHT Capitol Hill Day 2026 Brings Advocacy to Washington, DC

The 2026 Cure HHT Capitol Hill Day is taking place March 17–18, 2026, in Washington, DC, bringing together patients, families, clinicians, and researchers to advocate for increased federal support for HHT.

As research and clinical activity continue to grow, sustained federal funding remains critical to advancing scientific progress, strengthening care infrastructure, and improving outcomes for individuals living with HHT. During Capitol Hill Day, participants meet directly with members of Congress and their staff to highlight the importance of continued investment in HHT research and specialized care—ensuring HHT remains visible in an increasingly competitive funding landscape.

The HHT research community plays an important role in demonstrating how federal support translates into meaningful progress, from research advancements to real-world impact in patient care.

To learn more about Capitol Hill Day and ongoing advocacy efforts, visit:
https://curehht.org/invitation-2026-hht-capitol-hill-day-in-washington-dc/

How to Support This Effort (United States Only)

We are asking our HHT research community to reach out to your elected officials and urge their support for continued federal funding for HHT programs, including research and Centers of Excellence.

These messages help demonstrate to Congress how federal investment directly supports scientific progress, clinical programs, and patient outcomes—and why continued funding is essential.

To support outreach, we’ve included a sample email template.

We encourage you to take a few minutes to send a message and share this effort within your networks.