CHORUS Abstract Selected for Oral Presentation at ASH 2025

The Cure HHT CHORUS Registry has met its first big milestone! Our first abstract has been accepted as an oral presentation at the American Society of Hematology meeting this year in Orlando, Florida! 

This summer, we extracted data from the first 600 participants in the registry to prepare an abstract submission to ASH and a descriptive statistics-style manuscript, which will be published soon. Once published, we will be opening the CHORUS database for scientific proposals, and you can use the manuscript and CRFs as a guide for what information is available to query. 

Congratulations to the CHORUS teams, coauthors, and staff who have done huge amounts of work on the registry. 

Dr. Hanny Al-Samkari will be presenting this work at ASH - session details are below. Cure HHT will also be hosting a reception again during the meeting and an exhibitor table - we hope to see you there! 

Session Details:

• Session Name: 323. Disorders of Coagulation, Bleeding, or Fibrinolysis, Excluding Congenital Hemophilias: Clinical and Epidemiological
  Novel Insights into Diagnostics and Therapeutics of Bleeding in Inherited, Acquired Coagulopathies and BDUC

• Date: December 6, 2025

• Session Time: 4:00 – 5:30 PM

• Presentation Time: 4:30 – 4:45 PM

• Room: OCCC - W304EFGH

• Publication Number: 309

• Title: Clinical Spectrum of Hereditary Hemorrhagic Telangiectasia (HHT): Data from the Comprehensive HHT Outcomes Registry of the United States (CHORUS)