Can you feel it? That surge of hope and determination? We're not just starting another month – we're launching into HHT Awareness Month. For most of us, Hereditary Hemorrhagic Telangiectasia (HHT) is a part of our lives, often quietly shaping our experiences in ways others can't see. This month, we're not just acknowledging HHT; we're inviting everyone to look Beyond the Visible with us.
HHT is a complex genetic disorder. While some symptoms, like nosebleeds, are visible, so much of HHT's impact – the internal bleeding, the fatigue, the invisible burdens on mental health – remains hidden. This is why our campaign theme is so crucial. It's about acknowledging the hidden struggles, celebrating the quiet strength, and advocating for a world that truly understands the full scope of living with HHT.
This June, let's collectively bring the invisible realities of HHT into focus.
Every donation this month has double the impact — as the first $100,000 we raise will be matched.
Learn about all the ways you can support HHT awareness this June below: