Please Join HHT Awareness Month Efforts!

HHT AWARENESS MONTH IS HERE!

 

Can you feel it? That surge of hope and determination? We're not just starting another month – we're launching into HHT Awareness Month. For most of us, Hereditary Hemorrhagic Telangiectasia (HHT) is a part of our lives, often quietly shaping our experiences in ways others can't see. This month, we're not just acknowledging HHT; we're inviting everyone to look Beyond the Visible with us.

 

HHT is a complex genetic disorder. While some symptoms, like nosebleeds, are visible, so much of HHT's impact – the internal bleeding, the fatigue, the invisible burdens on mental health – remains hidden. This is why our campaign theme is so crucial. It's about acknowledging the hidden struggles, celebrating the quiet strength, and advocating for a world that truly understands the full scope of living with HHT.

 

This June, let's collectively bring the invisible realities of HHT into focus.

Every donation this month has double the impact — as the first $100,000 we raise will be matched.

 

Learn about all the ways you can support HHT awareness this June below:

 
 
 
 

Educate

 

Learn about all facets of HHT, not just the obvious ones. Understand the internal impacts, the diagnostic challenges, and the daily realities many face.

 
Share These Facts
 
 
 
 

Share Your Story

 

If HHT has touched your life, consider sharing your experience, even the parts that are hard to talk about. Your courage helps  validate other individual’s "invisible" battles.

 
Submit Your Story
 
 
 
 

Support Cure HHT

 

Join us in backing the organization’s dedicated to HHT research, patient support, and advocacy. Every contribution helps us push forward to a potential cure.

 
Give Today
 

RESOURCES TO GET STARTED QUICKLY

 

Be sure to follow Cure HHT on social media and if you post something about HHT during June, use #HHTAwareness and #SeeBeyond.

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Ready to use social media graphics and social media posts have been shared on our website. Check them out:

Gear up in time for Global HHT Awareness Day on June 23! The Cure HHT online store is stocked with new apparel and accessories.

 
 
 

UPCOMING EVENTS